How to request access to the DMR
How to submit data to the DMR
To submit data through the PDBP DMR, the researcher or healthcare professional will need to establish a PDBP DMR account. All data submitted to the PDBP DMR is de-identified, and this is accomplished through the generation of a global unique identifier (GUID) for each PDBP participant. To enable broad sharing of both de-identified clinical data and biospecimen resources, participants must be properly consented.
Request biospecimens from NINDS
- Request a new account with the PDBP DMR (if you don't already have one)
- Login to the DMR using your account and select the Query module
- Once in the Query module - select the NINDS Biorepository Sample Catalog and any other form structure (i.e. MDS-UPDRS) you would like to use to help refine your sample selection
- Sort biosamples by any of the selection criteria (select criteria tab) -subject information, sample information, quality control
- Select a biosample by clicking on the corresponding "system assigned ID for an orderable biosample"
- When you have finished your biosample(s) selection, go to the Account Management tab and select "Order Manager"
- At this stage you may further refine your Biomaterials Queue prior to selecting the biosample(s). Once your review is complete and biosamples selected, create your order by hitting the "add to order" button.
- A new order alert will appear. Select this notification (the notification will be seen above the "add to order" button).
- You will now be asked to upload 2 documents; 1) your BRAC application and 2) supporting documentation, i.e. upload a signed (investigator and institutional official) BioSEND Material Transfer Agreement for Biospecimens.
- Provide a shipping address and either save and exit or save and submit the order.
- Comments and decisions from the NINDS PDBP Biospecimen Resource Acquisition Committee (BRAC) will be communicated directly with the requestor through email correspondence and through the Order Manager under "Admin Orders".
- If your biospecimen(s) request is approved, the NINDS Repository staff will work with you to organize the receipt of the biospecimen(s).
- For further details on biospecimen ordering, please click here to assist you in creating an order for the NINDS Biorepository through the PDBP DMR. Please view the webinar located here to assist you in creating an order for biosamples.
The DMR utilizes Java-based web start applications such as the Download Tool and Submission Tool. The current Java-based web start versions will no longer be supported by the vendor (Oracle). As a substitute, the DMR has integrated the open source version of Java, known as OpenJDK and IcedTea. OpenJDK is a fully supported alternative to Java and IcedTea is the open source alternative to web starts (JNLP files). When installed, users can continue using the DMR Download Tool and Submission Tool, without restriction. The following instructions detail how to install OpenJDK and IcedTea.
(1) Removal of Java is an organizational decision and varies by user group. Users are strongly advised to consult with their internal IT-Departments for additional information prior to attempting the installation.
(2) User's need to have Administrative permissions to their computers in order to install OpenJDK and IcedTea.
How to Upload Neuroimaging Data
Detailed instructions coming soon!
GUID Module Tutorial
Video instructions coming soon!